http://www.ndss.org/
Click the link to learn more about what causes down syndrome, general information, health care and more.
On February 24th and 25th 2010, NDSS brought together almost 200 advocates for people with Down syndrome and their families (including many self-advocates) in Washington D.C. to send a strong message to elected officials about important national policy priorities.
The event kicked off with an interactive training, which prepared all participants for their experiences on Capitol Hill and shared new strategies for successful advocacy. The trainings included detailed information about national policy priorities (including authorizations of the ABLE Bill and the 21 Act and appropriations for the Kennedy Brownback Bill).
See the link for more about this event and other information that is important to families that have children with down syndrome.